Seizure Free
My Why
Charles McClinon
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Years
Learn About Misunderstood, Misdiagnosed, and Misconceptions of Epilepsy
Epilespy is not always easy to identify, because it may be an invisible disorder even to those who live with it. Seizures manfiest in so many ways that they are not always recognized or diagnosed.
Living With Epilepsy
58+ years of experience
Care for Epilepsy
45+ years of experience
Prescribed Medicines
10+ Combinations
Side Effects
Too many to list
Charles McClinon – Advocate
Volunteerism
Living the Best of My Life For the Rest of My Life
UCGNI
University of Cincinnati Gardner Institute patient and advocate. One of three patients who provide advice as a patient.
advocacy champion
Serve as an advocate to help people in the community to understand the importance eplipsy care and support.
seizure first aid
Received training and certficate for seizure first aid. I help people to be safe until further assistance is sought and implemented
smart program
Speak with others who live with epilepsy and medical providers who help us to self manage our epilepsy by making changes in our behavior.
emu volunteer
Speak to patients who have agreed to talk about support while they are in a controlled medical environment to measure seizure activity.
VNS Ambassador
Provide personal experience with people who are scheduled for Vagus Nerve Stimulator- a surgical procedure along with medicine to control seizures.
Community worker
Provide advocacy for people and those who support people who live with epilepsy. Includes providing educational materials.
social media rep
Certified to provide information and personal experience of a person who lives with epilepsy on several social media platforms.
Seizure First Aid
Train the Trainer
Certified to treach and train others for first aid seizures.